At LifeArc, we know from experience that for medical research to be most effective, it is vital that the people we are trying to benefit are involved throughout. That’s why we created our MND Insights Group – a group of people with lived experience of MND – to better understand the most pressing challenges faced by those directly affected by the condition.
In 2024, we conducted two workshops with the MND Insights Group and a community-wide survey, to explore treatment-related needs and priorities from people affected by MND. This report summarises the key findings from this research, identifying recurring . . .