General Archive
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Muscular Dystrophy Translational Research Fund
Muscular Dystrophy Translational Research Fund The Muscular Dystrophy Translational Research Fund is a joint fund created by LifeArc and Muscular…
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News releasesLifeArc funds pivotal clinical trial to treat an ultra-rare genetic disease with possible link to leader of the mutiny on the Bounty in 1789
A pivotal clinical trial to look at repurposing the UK-licensed medicine, deferiprone, for patients with neuroferritinopathy, an ultra-rare genetic disease…
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Articles & blogs6 challenges in rare disease research and how we can overcome them
Rare conditions, individually, have low patient numbers. However, with more than 7,000 rare diseases identified, collectively there are millions of…
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Articles & blogsCatriona Crombie talks to Rare Revolution about LifeArc’s investment of more than £100 million into rare disease research by 2030
Catriona discusses why LifeArc is well placed to help overcome some of the obstacles in rare disease research
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News releasesGroundbreaking new £100m LifeArc programme aims to improve the lives of people living with a rare disease
Brings together the world-leading expertise of Health Data Research UK, University of Edinburgh, LifeArc, Eisai and Gates Ventures
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News releasesLifeArc and Sarcoma UK fund research to guide treatment decisions in rare cancer
£150,000 grant will fund a study of a biomarker test that could improve outcomes for patients with a rare sarcoma…
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Articles & blogsTranslational research into children’s rare diseases enters 5th year of collaborative funding
Accelerating research that will have a significant impact on the treatment of children and young people
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News releasesLifeArc launches £40m funding call to create Translational Rare Disease Centres
Centres to become focal points for rare disease research translation and engagement with the patient community across the UK.
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News releasesLifeArc plans two major funding calls to boost translational research in rare disease & lung health in cystic fibrosis
The calls are part of our wider £100m programme to support scientific innovation for people living with cystic fibrosis.
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Articles & blogsRare Disease Day 2023 – Robbie’s story
Robbie has a rare genetic neurodegenerative disease known as AP-4 Hereditary Spastic Paraplegia (AP-4 HSP) subtype SPG47.
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Articles & blogsFour ways we support rare disease research
LifeArc provides a range of advice, funding and science to help scientists turn promising research into potential treatments.
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Articles & blogsLifeArc awards £3 million to advance promising early rare disease research from the lab to the patient
Pump-prime funding to help researchers get innovative approaches off the ground